One Million Minds campaign

29.11.2023

About the campaign

Campaign Manifesto

European Parliament 2024-2029 candidate? Sign the pledge!

Organisation? Endorse our Manifesto

Individual? Sign the petition

About the campaign

“One Million Minds” is the European Multiple Sclerosis Platform’s European elections 2024 campaign. We are aiming to reach the goals of the campaign by:

  • identifying a several concrete proposals to the Members of the European Parliament 2024-2029, other European institutions and national authorities to improve the quality of care and lives of people with multiple sclerosis and other neurological conditions in Europe which they deserve and encouraging future Members of the European parliament to sign up to our pledge to deliver on our proposals during the mandate of 2024-2029.
  • mobilising our partners, supporters and friends to endorse our campaign and our efforts to achieve a tangible change in the next 5 years.
  • proving a platform to the MS community to voice the urgency with which the European and national decision-makers must act to deliver on the demands of the MS community.

Campaign Manifesto

This manifesto is a response to the urgent need to address the unmet needs faced by over 1.2 million individuals living with multiple sclerosis (MS) across Europe.

Every five minutes, someone, somewhere in the world is diagnosed with MS.

The prevalence of MS is substantial, with 37,000 new MS diagnoses reported across 27 European countries in 2018.

As a chronic neurodegenerative condition, multiple sclerosis (MS) involves the immune system erroneously attacking healthy nerves. MS manifests uniquely in each person, showcasing unpredictable symptoms such as pain, fatigue, diminished mobility, and cognitive dysfunction.

Read the Manifesto in plain text format.

Download the Manifesto in PDF format.

Download the Manifesto in Word format.

Download the Manifesto in various languages:

ūüá¨ūüá∑ Manifesto in Greek.

ūüá∑ūüᳬ†Manifesto in Serbian.

ūüáłūüáģ Manifesto in Slovenian.

ūüá™ūüᳬ†Manifesto in Spanish.

Candidate for the European Parliament 2024-2029? Sign the pledge!

Members of the European Parliament have a real power to make a difference for people living with MS and other neurological conditions! Now that you have read the Manifesto, we encourage you to sign the pledge below. Once you’ve signed the pledge, we will send you a cool visual to share on your social media accounts so your constituents can learn about the steps you are taking to ensure quality of care and life for people with MS. Spread the word! Invite other MEPs and candidates to sign the pledge to

  • commit to the empowerment of individuals with MS throughout the upcoming mandate (2024-2029).

  • champion the principles of human rights, equality, social inclusion, and social protection for the MS community.

  • actively contribute to creating a more inclusive, supportive, and empowering environment for the MS community in Europe.

By clicking ‚ÄúSign the Manifesto!‚ÄĚ you are agreeing to EMSP using your information for the purpose of our work, and specifically to communicate about the One Million Minds campaign. Read our full privacy policy.

Endorse our Manifesto

“Alone we can do so little; together we can do so much.”

That is why we invite our partners, allies and friends to endorse our campaign Manifesto. Simply email us your organisation’s name, the name of the person endorsing our campaign on behalf of your organisations and a short quote why it is important for your organisations to support our campaign and why you are endorsing it.

See the list of organisations which endorse our campaign.

Sign our petition “Quality Access to Care for People with Multiple Sclerosis and Neurological Conditions”

‚ÄúThe power in people is stronger than people in power.‚ÄĚ

Let’s show our power and make sure that the people in power listen to us and act upon our needs and demands! Sign our petition Quality Access to Care for People with Multiple Sclerosis and Neurological Conditions, ask your your family, friends, colleagues to sing, share it on your social media channels,

To the President of the European Parliament, Members of the European Parliament, Ministers of Health, Social Affairs, Labour and Education, the European Commission and the European Council.

This petition is run by European Multiple Sclerosis Platform (EMSP).

PETITION

Together, we will build a better Europe for people with Multiple Sclerosis (MS) and other neurological conditions and people with disabilities, their carers, and their communities.

We call the EU and the Members States to 

  • Support all countries to improve access to¬†appropriate MS therapies and programmes,¬†expand cross-border access to treatment, and improve the use of regional funds and other EU financial mechanisms.
  • Reduce inequalities in access to specialised, multi-disciplinary healthcare by supporting professional societies and others to develop accredited MS specialist courses for healthcare¬†professionals, and encouraging uptake in all countries.
  • Improve the social, economic and employment opportunities for all people with MS and¬†monitor that their rights are consistently and equally applied in all countries.
  • Expand employment and educational support to young people with disabilities and chronic conditions, through existing European study and employment programmes.
  • Adopt employment legislation to protect people with MS and their carers from workplace discrimination and unfair dismissal.
  • Support the use of a common data set for MS data collection including patient-reported outcomes across all¬†countries, and encourage trustworthy and transparent real-world data collection practices.

We call all national decision-makers to 

  • Includes a holistic MS care model in a national chronic or neurological disease policy and¬†provide dedicated funding for implementation.¬†Eliminate delays in national licensing and reimbursement of disease-modifying drugs and symptomatic treatments after European Medicines Agency approval.
  • Increase specialist training opportunities for MS among neurologists, nurses, rehabilitation specialists and other healthcare professionals. Integrate rehabilitation therapists and other specialists, such as neuropsychologists, pain specialists and social care specialists, into all MS multi-disciplinary teams as standard and secure reimbursement for these roles.
  • Provide long-term and consistent funding for social care to expand provision of quality services and secure financial protection.
  • Expand the social care workforce and integrate new models of care which better support people with MS and their¬†carers.
  • Expand and standardise distance learning and flexible working options to enable people with MS and carers to take up and¬†maintain education and employment.
  • Expand MS disease registries to cover all people with MS and mandate data collection encompassing clinical, occupational, and patient-reported data.

WHY IS THIS IMPORTANT?

This petition is a response to the urgent need to address the unmet needs faced by over 1.2 million individuals living with MS across Europe.

Every five minutes, someone, somewhere in the world is diagnosed with MS.

As an unpredictable chronic neurodegenerative condition, MS involves the immune system erroneously attacking healthy nerves. The complex nature of MS makes it an ideal case study for strengths and failures in health and social care.

Our vision for care of MS, ¬†inspired by the World Health Organisation‚Äôs framework for integrated care, is for ‚Äúall people [to] have equal access to quality health services that are co-produced in a way that meets their life course needs, are coordinated across the continuum of care, and are comprehensive, safe, effective, timely, efficient and acceptable; and all carers [to be] motivated, skilled and operate in a supportive environment‚ÄĚ.

Countries that fail to provide quality care are failing their communities.

There are currently huge and unacceptable inequalities in the care of people affected by Multiple Sclerosis and other neurological conditions across Europe, in access to timely, appropriate healthcare, healthcare professionals and social support for people with MS and their carers. Inadequate standards of care cannot and will not be accepted.

According to 2020 MS Barometer:

  • 43% of people with MS in Europe do not receive diseases-modifying¬†drugs.
  • 52% of people with MS in Europe do not have access to physical rehabilitation¬†services.
  • only 16 countries in Europe provide social support specific to carers of children and adolescents with¬†MS.
  • only 48% of people with¬†MS¬†in Europe are in¬†employment.
  • 65% of people with MS in Europe are not recorded on the national MS diseases registries.

The 2020 MS Barometer shows that the entire MS community has work to do. Policymakers and decision-makers from the local to the European level must immediately secure sufficient and consistent funding for health and social care systems to provide people with MS with the clinical and practical support that meets their needs. We must facilitate access to employment, and secure disability benefits and social support for all people with MS. These services need to be available from the life-changing moment of diagnosis and be responsive to changing needs. The health, social, education and employment sectors must organise around people with MS.

European Multiple Sclerosis Platform