Patients Shaping AI: MS CAB Consultation on WISDOM Project

On 3 December 2025, the European Multiple Sclerosis Platform (EMSP) organised the second consultation between the Multiple Sclerosis Community Advisory Board (MSCAB), a panel of expert patients and researchers from the WISDOM project. This “Gate 2” meeting facilitated by EMSP Project Coordinator, Mohsharif Nasrulloeva, brought patient voices to the forefront of AI development, gathering critical feedback on three refined digital health tool concepts designed to support people living with chronic immune-mediated diseases such as Multiple Sclerosis.

Co-creation in action

The MS CAB panel provided input on digital health tool development, ensuring that patient priorities shape research from the outset. The WISDOM team presented three AI tool concepts for discussion:

• A risk prediction tool for primary care
• A clinical decision support tool for specialists
• A self-management companion tool for patients

Through structured dialogue, MSCAB members shared valuable insights on trust, usability, explainability, and the emotional impact of predictive technologies. A live poll revealed strongest support for the self-management tool, with members highlighting its potential to empower people with MS in their daily lives.

Beyond algorithms: trust and understanding

“It’s not just about whether an AI tool works—it’s about whether people can understand and trust it,” shared one CAB member. Another emphasised the value of the collaboration: “The CAB activity is essential for this project and it is good to see that the researchers are really listening to what people with MS say.”

The session also featured a presentation by Prof. Mette Hartlev, University of Copenhagen, on WISDOM’s literature review examining ethical, legal, and practical barriers in AI-enabled healthcare. This sparked discussion on the importance of meaningful patient involvement beyond checklists and formal assessments.

“Ethics shouldn’t be a tick-box exercise,” one participant noted. “Real involvement of patients throughout development is what makes a tool ethical.”

Next steps

This consultation forms part of WISDOM’s ongoing co-creation journey. The feedback will now be integrated into the next phases of tool design, helping ensure that AI in healthcare is developed with patients—not just for them.

More Information
For updates on the WISDOM project, visit https://wisdomhorizon.eu/

More information about MSCAB: https://emsp.org/projects/ms-cab/