Parliamentary event in Poland: ‘The faces of MS’24.09.2013
The Polish Multiple Sclerosis Society (PTSR) was represented at a debate held in the Polish Parliament on 24 September.
The main focus of the event were the social costs of MS, with a patients’ perspective approach.
The guest of honour was EMSP’s President John Golding. He gave a presentation about the situation of people with MS in Europe, opening the debate. He was followed by dr Gisela Kobelt’s analytical lecture on the social costs of MS.
The President of the Polish Health Technology Assessment (HTA) Agency, dr Wojciech Matusewicz, was also present at the event. He explored the possibility of eliminating the 5-year time limit for the disease-modifying drugs (DMDs) treatment.
The National Health Fund representative was also among the speakers. He tackled the problems faced by people with MS with the financing of the reimbursement programmes.
The neurology expert present at the event, Professor Krzysztof Selmaj, gave a lecture on new innovative treatments and the present trend of patient tailored therapies.
The debate was organised by the “Neuropozytywni Foundation” and was boosted by the presence of Hungarian, Slovakian and Czech patient organisations.
EMSP’s Director External Affairs, Christoph Thalheim, sat among the audience as an attentive observer.