Swiss MS Day: Launch of national MS register29.06.2016
EMSP’s members from the Swiss MS Society marked the Swiss MS Day, 25 June, with a multi-stakeholder event organised in Zurich and attended by 800 participants – patients, carers and healthcare specialists among them. The national MS register was launched on this occasion.
The Director of the Swiss MS Society, Patricia Monin, said upon opening the event that she was overwhelmed with the record audience and welcomed both the veteran members of the society, and the newly diagnosed.
Treatment updates and MS games
The attendees were able to receive and exchange information, engage in rehabilitation exercises and even play stimulating video games, all related to living with multiple sclerosis.
Renowned MS specialists such as Professor Pasquale Calabrese (recently speaking at EMSP’s Spring Conference) provided the latest updates in MS treatment, and leading MS nurse Susanne Kägi made herself available for individual conversations with those affected by multiple sclerosis.
Launch of Swiss MS Register
One of the highlights of Swiss MD Day was the launch of the long-awaited national MS register, a collection of highly relevant MS data from a population of at least 10,000 MS patients and carers.
Prof. Dr. Jürg Kesselring summarised the importance of the register:
“This initiative will allow those affected to report their experiences and rely on a constructive dialogue, with input from doctors and researchers. We will work together.”
The Institute of Epidemiology, Biostatistics and Prevention from the University of Zurich will be responsible for the implementation and scientific evaluation of the MS register.
Find out more about the importance of MS registers from EMSP’s flagship project – the European Register for Multiple Sclerosis (EUReMS).