Organisational Capacity Building

Make your patient organisation stronger by learning practical tools, skills, and strategies. This section provides the resources you need to improve your services, engage your community, advocate effectively, and grow sustainably. Whether you are developing new programmes, improving communication, or shaping organisational strategy, you will find the guidance you need to build stronger and more impactful structures.

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Advocacy, Campaigning & Public Influence
How can patient organisations drive change and influence decision-makers.
Research, Evidence and Learning
How can patients organisations use data to build evidence, contribute to research, and build knowledge.
Services and Community Support Provided by Patient Organisations
How can patient organisations support their members and people affected by MS, NMOSD, MOGAD and other related conditions.

MCB: Building solidarity in Western Europe

The Workshop on Building solidarity in Western Europe , part of EMSP’s Membership Capacity Building (MCB) Programme, was held in…

MCB: Creation of Helplines

The Workshop on Creation of Helplines, part of EMSP’s Membership Capacity Building (MCB) Programme, was held in 2021. In this…

MCB: Design and data considerations for MS registries

The Workshop on Design and data considerations for MS registries, part of EMSP’s Membership Capacity Building (MCB) Programme, was held…

Impact of Multiple Sclerosis Symptoms (IMSS)

You can find all the project information and brochures for each country here.

MS specialist perspective – European Parliament debate on Real World Data

Prof. Eva Havrdova talked about the potential of real world data to drive regulatory and reimbursement decisions at EMSP’s related…

Press Release: Real World Evidence data, key to equitable health care systems?

People living with MS in Europe could receive timelier access to safer and more efficient therapies. The key is better exploitation of…

Patient perspective – European Parliament debate on Real World Data

Patient advocate Francois Houyez of EURORDIS talked about the patient benefits from the use real world data at EMSP’s related European…

MCB: Setting up MS Registries with MS Societies in the Western European region

The Workshop on Setting up MS Registries with Multiple Sclerosis Societies in the Western European region, part of EMSP’s Membership…

MCB: MS Registries with MS Societies in the Balkans region

The Workshop on MS Registries with MS Societies in the Balkans regional, part of EMSP’s Membership Capacity Building (MCB) Programme,…

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