The needs of paediatric MS caregivers

22.12.2025

Did you know that the number of children and adolescents living with MS is increasing worldwide? A diagnosis of MS at such a young age impacts the quality of life of children and adolescents. What’s more? This condition places extra demands on caregivers-their parents. Parents speak up not only for themselves but for their children as well, asking for:

  • Psychological support, especially during the diagnosis period
  • Better information about MS, MS treatment and MS management from healthcare professionals
  • Practical support, including financial means from social care systems; schools’ assistance regarding their children’s fatigue and cognitive issues
  • Stronger social support networks to cope with their challenges

In its interview series, EMSP asked caregivers, adolescents, healthcare professionals and patient representatives about their personal experiences, which was shared with the public in the framework of an online campaign between November and December 2019.

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